2.8. Health care facility - Any hospital, nursing home, clinic, behavioral health center, adult medical day care facility, or other facility that provides health care or diagnostic services to individuals whether public or private.
2.9. Health care provider - Any physician, nurse, or other individual who provides medical, psychiatric, nursing, or other health care services of any kind to individuals.
2.10. Hospital - A facility licensed as a hospital under WV Division of Health Legislative Rule, Hospital Licensure, 64 CSR 12.
2.11. Medical Information - Data or other information regarding the history, examination, radiological or laboratory findings, diagnosis, treatment, or other clinical care for a person examined or treated for a suspected or actual illness.
2.12. Nursing Home - Any facility licensed as a nursing home under WV Legislative Rule, Nursing Home Licensure, 64 CSR 13, or any extended care facility operated in conjunction with a hospital.
2.13. Related Disorders - Dementias associated with vascular disease, mixed dementia and other medical conditions such as Parkinson’s disease and Huntington’s disease. These dementias also include senile dementia, presenile dementia, multi-infarct dementia, vascular dementia, alcoholic dementia, dementia with Lewy bodies, Creutzfeldt-Jakob disease, frontotemporal dementia, and medical diagnoses with dementia.
2.14. Residential Care Community - Any facility licensed as a residential care community under WV Division of Health Legislative Rule, Residential Care Community licensure, 64 CSR 75.
2.15. Registry - West Virginia Alzheimer’s Disease Registry is a central information database concerning Alzheimer’s disease and related disorders maintained by West Virginia University. |
2.16. Board of Governors - West Virginia University Board of Governors.
§64-94-3. Purpose: Required Reporting of Alzheimer’s disease and related disorders.
3.1. The Board of Governors shall establish the Registry and delegate to the Vice-President for Health Sciences at West Virginia University or their designee the responsibility for developing specific protocols for the reporting of Alzheimer’s disease and related disorders to the Registry. The protocols shall include any information to be reported under this rule and any additional relevant information determined to be necessary for adequate reporting. All protocols must be approved by the West Virginia University Institutional Review Board.
3.2. The reports required by this rule shall be reported electronically or in paper format on forms available from or provided by the Registry.
§64-94-4. Registry Contents.
4.1. Information to be reported. Reports from health care providers and facilities, as defined in section 2 of this rule shall include the individual’s:
4.1.a. Last name, first name and middle initial;
4.1.b. Birth date;
4.1.c. Gender;
4.1.d. Last four digits of the Social security number;
4.1.e. Maiden name( if female);
4.1.f. Race/ethnicity;
4.1.g. Address, including street, city, county, and zip code;
4.1.h. Contact information including secondary contacts;
4.1.i. Brief medical history; |
